在研究界,患者和公众参与研究的参与受到了越来越多的接受。在支持这个概念的正是在支持该概念的正是在联合制作的期刊上发布的Research Involvement and Engagement,这是专门针对患者和更广泛的公众参与研究的各个阶段。
The Cochrane review on physiotherapy after stroke was recently updated withuser involvement playing a key role from the very start of the process. In this podcast, we speak to some of the individuals involved with the research.
她的e they share their perspectives on why they think this approach is so important and how they see it changing the future of research.
Starting with Alex Pollock, lead author of the review update, from Glasgow Caledonian University.
“I felt it was very important to get the question right and get the question from the point of view of the users of the evidence rather than just us as researchers.”
Secondly, Heather Goodare who contributed as a user. Since her husband’s stroke in 2007, Heather has been involved in stroke medicine research as a carer.
“What on earth is the point of doing research if it doesn’t make the patient’s life better?”
Next is Editor-in-Chief of the Cochrane Library, David Tovey. Before joining the Cochrane Library in 2009, he worked previously at the BMJ as an Editor. David has also worked as a General Practitioner.
“I think it was always envisaged that consumers, patients, carers would have a strong voice in Cochrane, and there certainly are groups that have taken that on really whole-heartedly”
Finally, we spoke to co-Editor-in-Chief ofResearch Involvement and Engagement,理查德·斯蒂芬斯。理查德(Richard)是两种癌症的幸存者,心脏紧急状态以及其他各种健康挑战。他还担任过精神和身体状况的家庭成员的照顾者。
“实际上,为了增加知识库,这并不是要增加我们的知识库。这是为了增加知识库,以提供更好的治疗,更好的护理,更有效的干预措施以及更长,更快乐的生活。”
进行研究是很好的,因为人们可以治愈各种疾病,我们可能会在医学上取得各种里程碑。