Bringing together patients and researchers in dementia research

Research has taken great strides against some of the most serious diseases, including cancer and HIV. One man hoping it will do the same for dementia is Professor Martin Rossor, National Director for Dementia Research at the NIHR. Here, Martin talks about a ground-breaking new service that’s leading the way.

Dementia occurs when the brain is damaged by diseases, such asAlzheimer’s disease或一系列笔触。患有痴呆症患者的特定症状将取决于大脑受损的部分以及导致痴呆症的疾病。

Dementia is used to describe a group of symptoms including memory loss, confusion, mood changes and difficulty with day-to-day tasks.

该疾病影响了英国超过85万人,其中2500万英国人口有亲密的朋友或家人受到影响。英国的某人每三分钟就会出现痴呆症,预计未来30年受影响的人数将翻一番。将痴呆症的发作推迟了五年,将使受痴呆症影响的人数减少三分之一。

提高我们对痴呆症的了解

2012年3月,戴维·卡梅伦(David Cameron)向整个痴呆症领域提出了挑战,呼吁公共,慈善机构和私营部门做更多的事情来改善诊断,护理和研究。该电话已与今年3月发出的总理2020年痴呆挑战挑战赛重新确认。

Alongside this, a new national poll* has shown that almost two thirds of the general public (62%) would be willing to take part in dementia research, but more than four out of five people (81%) wouldn’t know how to volunteer.

政府的数据表明,不到5%的痴呆症患者参加研究研究,因此缺乏与自愿志愿者的接触,这是对这种情况的重大研究。

There are numerous questions about the cause, diagnosis, treatments, and best care for which there are no clear answers yet. Our knowledge of dementia also currently lags behind that of other major diseases, such as cancer and heart disease.

为了改善现在和将来痴呆症患者的生活,我们需要找到提高诊断准确性,开发新的预防和治疗方法并建立新的护理方法的方法。对痴呆症的研究将有助于找到这些答案。

Introducing the Join Dementia Research service

Having launched in February 2015, there are already over 7,000 people signed up, and over 1400 of those have already taken part in a research study.

英国的第一个加入痴呆症研究is a new nationwide online and telephone service that promises to accelerate the pace of dementia research. It allows people with and without dementia to register their interest in studies, helping researchers find the right participants at the right time.

Having launched in February 2015, there are already over 7,000 people signed up, and over 1400 of those have already taken part in a research study.

With the continued focus on dementia research and increasing levels of funding we expect to need even more people to participate in dementia research over the coming years. Traditionally it has been difficult to identify the right people for the right study at the right time, but Join Dementia Research is streamlining this process and we are already seeing the benefits of this boost in volunteers for research.

Clinical trials in dementia

从历史上看,确定潜在的研究参与者发生在记忆诊所和GP手术中,并依靠临床团队筛查医疗笔记。加入痴呆症研究根本改变了这一点,使生活中的痴呆症,护理人员和公众都可以推动这一过程。

加入痴呆症研究makes it easy for researchers to find people who match their specific study requirements. As a result, it will help researchers plan their studies more effectively and deliver research more quickly and cost effectively.

This will deliver improvements to people with dementia faster than ever before. It’s also important for people with dementia and their friends and family to be given the opportunity to take part in research, if they choose to.

从研究的时间长度到该研究是否涉及血液检查,扫描以及是否有新药,或仅是观察性的。

Some studies may require you to attend your local hospital, while for others you could take part at home. There are also many different methods for carrying out research, which might involve in-depth interviews, focus groups or questionnaires.


How can someone sign up to Join Dementia Research?

加入痴呆症研究
加入痴呆症研究
www.joindementiaresearch.nihr.ac.uk

Anyone interested in volunteering for dementia research can sign-up online atwww.joindementiaresearch.nihr.ac.ukor those unable to register online can contact the charities: Alzheimer’s Research UK 0300 111 5 111, Alzheimer’s Society 0300 222 1122 or Alzheimer’s Scotland 0808 808 3000


*New poll figures quoted are from YouGov Plc. Total sample size was 2,227 adults and fieldwork was undertaken between 29-30 January 2015. The survey was carried out online. The figures have been weighted and are representative of all UK adults (aged 18+). The survey was commissioned by Alzheimer’s Research UK.

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