For many of us palliative care is associated with elderly and terminally ill patients. Unfortunately, many children also suffer from life-threatening conditions. Children are often unable to provide their perspective on the quality of end-of-life care they receive due to young age or the type of illness they have. In a study published inBMC Palliative Care2015年1月，Widger及其同事描述了儿科姑息治疗由于缺乏定义明确且可靠的方法来衡量儿童终止护理的质量而受到阻碍。研究人员认为，父母是孩子经历的最佳代理人。因此，该研究试图开发和测试一种工具，以衡量母亲对儿童死亡之前，之后和之后接受的护理质量的看法。
在这项研究中，研究人员使用了文献搜索，焦点小组和心理测试，以提供一种有效而可靠的方式，以包括亲人的父母的声音评估儿童的临终护理质量。结果是确定对高质量护理重要的10个领域以及一种衡量质量护理的方法。这些发现对于医疗保健专业人员和决策者来说是有价值的，可以在遭受巨大苦难的时期养育儿童及其家人。
“我想感觉到宾至如归”：确定环境设计的哪些方面对痴呆症患者的生命尽头很重要
没有多少人知道他们的生命将结束的环境。过去，研究人员探索了痴呆症患者活着的环境的设计。它应该加强个人身份并帮助维持自己的能力。痴呆症患者生命的尽头呢？患有痴呆症的人是否受到姑息治疗的特殊要求？在这项研究中发表在BMC Palliative Carein May 2015, researchers investigated the aspects of the physical environment that are important to support a good quality of life in the palliative approach of dementia patients.
理查德·弗莱明（Richard Fleming）和同事在澳大利亚东海岸的三个地点成立了焦点小组。其中包括最近丧亲的家庭护理人员，患有痴呆症的人和医疗保健专业人员在姑息治疗病房中与痴呆症患者一起工作。后一组将设计定义为促进良好的护理义务是最重要的。痴呆症患者和家庭护理人员另一方面阐明了在一个平静，私人环境中可以感觉到家里的重要性。此外，通过参与度获得舒适感和使用技术保持联系的机会很重要。
家庭护理人员与卫生专业人员之间关于急性医院环境中老年人的临终护理的沟通：一项定性研究
众所周知，医疗保健专业人员与患者亲戚之间有效沟通的重要性。从研究中获得的知识影响了医疗保健专业人员的实践，并且还将其纳入了未来医师和护士的培训课程中。在垂死的患者中，医院工作人员与亲戚之间的有效沟通尤为重要。发表在BMC Palliative Carein August 2015 aimed to understand the factors and processes which affect the quality of care, in particular regarding communication between hospital staff and relatives. Caswell and colleagues focused on older people who are dying in an acute hospital setting with an emphasis on the family carers’ perspective.
The researchers showed that carers’ experience of the end-of-life care of their relative was enhanced when mutual understanding was achieved with healthcare professionals. However, some carers reported communication to be ineffective. They felt unsure about what was happening with their relative and were distressed by the care their relatives received.
Palliative care professionals’ willingness to perform euthanasia or physician assisted suicide
安乐死和医生协助自杀是一个顶级的ic that provokes strong reactions and has sparked many debates in recent years. In particular the case of a murderer who has asked to be euthanized in Belgium at the beginning of the year has received wide-spread attention. From a legal standpoint, the global situation varies. Some countries have legalized euthanasia, others allow assisted suicide, but in the majority of countries no legislation is in place yet. As we discuss the ethics and politics of such a debate, it is sometimes forgotten how those who would deliver such a treatment feel, the palliative care professionals.
在最近发表的一项研究中BMC Palliative Care，，，，Zenz and colleagues investigated the willingness of physicians and nurses to take part in euthanasia or assisted suicide. The authors analyzed more than 450 questionnaire responses from palliative care professionals in Germany where euthanasia is illegal but assisted suicide is allowed. The researchers concluded that among the professionals who would eventually perform euthanasia and assisted suicide, the respondents were more willing to perform the latter. Reluctance was much greater with respect to non-terminally ill patients. Interestingly, the authors report that the general acceptance of euthanasia and assisted suicide among palliative care professionals is high; however the actual willingness to perform life-ending measures is low.
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